Idiopathic Pulmonary Fibrosis and cannabis or cbd oil as treatment- advice or help?

Discussion in 'Medicating' started by eyeswideopen557788, Aug 30, 2015.

  1.  
    eyeswideopen557788

    eyeswideopen557788 New Member

    Hello all,

    My mother was diagnosed with idiopathic pulmonary fibrosis several years ago. She was actually diagnosed while I was in college, but I knew nothing about it until I graduated. She told me that she didn't tell me anything because she wanted be to focus on my studies so that I could the degree I worked so hard to earn. She suffered in silence.....

    She's had the disease for about six years (which is already 1 year over the average life expectancy of 3 to 5 years). She is currently on oxygen now (past 2 years) 24/7. She is in alot of pain all the time. She has trouble breathing and being motivated about anything at all. She is a fighter though, and she fights to make it through another day every day. I recently started researching cannabis, medical marijuana and cbd oil as alternative treatments to things like pirifidone (this drug helps with the lungs but it tends to have very negative gastrointestinal effects) or a lung transplant which she is already to old to receive... she is 65). She has alot of things she wants to do in life that she hasn't been able to. It's like she's had to put her life on hold and let it deteriorate.... It really breaks my heart seeing her like this because I don't know what else to do. I help her as much as I can, but when she has those cough attacks that leave her out of breathe, it kills me. My depression and anxiety have worsened over these years (I should honestly be on antidepressants, but I went down that route before and I almost took my own life.... so I don't want them again....).... But anyway, to the point:

    I was wondering if anyone in the forums with lung conditions of any kind, be it IPF or COPD... or any interstitial lung disease... anything... If you have any advice, anecdotes, or valuable info to share, please help me help my mother. I cannot keep seeing her like this.... and she deserves a better quality of life for the rest of the life she has. She's my best friend. This is such an awful disease....

    thanks in advance for any info you can provide [​IMG][​IMG]
     
  2.  
    qwizoking

    qwizoking Well-Known Member

    keep her on the drugs prescribed, they will help slow progression. really important, you could actually add a couple. talk to your doc


    yes weed can help, not just easing side effects but with the disease as well. obviously you would make edibles, a dmso topical wouldnt do any harm

    And go easy on dosing, especially if she needs oxygen
     
  3.  
    eyeswideopen557788

    eyeswideopen557788 New Member

    Hello qwizoking :-)

    She's actually not on any prescription meds. The pirifidone is out of the question because it would tear up her stomach and intestines. She takes a med called pantaprazole for her stomach and acid reflux.... Which honestly I believe a lot of that is from stress. On days where she isn't stressed, she can eat well and she doesn't have stomach pain or reflux.

    I will look into the edibles. Thank you. She said she'd be willing to try anything at this point.

    Oh, I forgot to mention she is diabetic... So things like juicing or eating fruits is hard for her because of the sugar content. :-(

    Her health is a delicate balance right now.....
     
  4.  
    CBDJuiceSeeker

    CBDJuiceSeeker New Member

    Hi eyeswideopen557788
    Did you manage to get your Mum onto CBD oil and vaporizing? Here is a link to a woman who cured her idiopathic pulmonary fibrosis?

    Hope to hear from you
     

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