Adventures in RBD and Central Sleep Apnea

Discussion in 'Medicating' started by pg3t, Aug 10, 2018.


    pg3t New Member

    I have REM sleep behavior disorder (RBD) and central sleep apnea. If I don't sleep inclined on a wedge pillow, I also have mild obstructive sleep apnea. I told my neurologist about the fact that OG Kush & Blue Dream seems to eliminate all of my obvious symptoms, but I still count apnea events every night using a datalogging SpO2 device and I am probably not getting enough REM sleep as is common with daily marijuana users. Under the care of a sleep specialist, I have probably tried all of the various CPAP and BIPAP settings and masks. Unfortunately, I get stomach bloating and I don't expect that such machines will work for me. The doctor said to discontinue mj a week before the latest sleep study and stay off of it until the sleep study ends. A couple days after the study, an assistant called to say "Congratulations! You no longer have obstructive sleep apnea. Please make an appointment with the doctor in a year and let us know if you have RBD events" I was shocked that the doctor seemed to be relying on me to smoke mj despite the fact that I am missing REM sleep and still have apnea events. So I asked the assistant to ensure that the doctor is aware that I am smoking mj and will definitely have REM episodes if I don't. I expected to hear something, but no word from the doctor. So I called back with additional questions on Monday. Still nothing. I was diagnosed a couple years ago and have been reading this and that. I'm a retired mechanical engineer, so this area of study is new to me. My body of knowledge now makes me think that, if the doctor really just wants me to 'carry on', I should probably be getting much more of the CBD and some, but not much, THC. Perhaps some additional terpenes would be good, but I understand that this area of collective knowledge is still immature. I read that epileptics may use 300mg of CBD daily. Folks apparently get releif from pain with about 25mg/day, but I'm not in pain. I would guess that neurological maladies (central sleep apnea events) probably require more than a couple mgs/day. My greatest hope is that mj would be curative, but simply minimizing apnea and RBD events while avoiding unwanted long-term damage to my cognitive function or other bad stuff is valuable, of course. If I would benefit from a massive dose, I would want to avoid smoking my brains out. Presently, I smoke a piece of mj about the size of a paper match head an hour or so before bedtime. That tiny amount is entirely effective in avoiding RBD and eliminates the chance that obstructive apena events occur if I slip off my wedge pillow, which rarely happens. I'm thinking that I need to score a gallon of CBD oil or something. But maybe I could just look for a strain with much more CBD. Certainly, there is not much, presently, in the collective body of knowledge to go on, but if anyone has thoughts, they would be appreciated
    Last edited: Aug 10, 2018

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