Life saving transplants denied to medical marijuana patients

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...And norml wants to stop it :leaf:

(taken from norml.org)
Recently the Los Angeles City Council held hearings on the thorny issue of medical marijuana dispensary regulation. For years city officials have abrogated their duty to create sensible regulations for the dispensaries that have proliferated across the Los Angeles basin. The number of dispensaries has ballooned to over 500 (not the 1,000+ often claimed) following an ineffective moratorium on the retail medical marijuana outlets.

As usual, the hearings were packed, with medical marijuana patients and activists flooding the chambers to add their testimony to the record. One citizen petitioning her government for a redress of grievances was the Executive Director of the new Beverly Hills NORML 90210 (http://www.norml90210.org/become-a-member.php), Cheryl Shuman. In sixty seconds of testimony, Cheryl recounts her own personal medical marijuana tragedy, one that has befallen many desperately ill patients who use cannabis — even legally — and require life-saving organ transplants.


Cheryl’s case is not unique. All across America, hospitals are booting patients off of organ transplant lists because of their use of cannabis. Being a legal user of cannabis for medicinal purposes in the now fourteen states that recognize that right is of no help; even legal medical marijuana patients are essentially given a death sentence by hospital and insurance bureaucracies for their use of a safe, non-toxic herbal remedy.

Timothy Garon was a Seattle musician who had contracted Hepatitis C. Garon was on a waiting list for a life-saving liver transplant. The state of Washington recognizes Hep C as a qualifying condition for the medical use of cannabis. Garon’s physician, Dr. Brad Roter, authorized Garon to smoke pot to alleviate his nausea and abdominal pain and to stimulate his appetite while he awaited. Garon had become dangerously thin and malnourished and the cannabis therapy helped bring him back from the brink of death.

But unbeknown to Dr. Roter, hospital transplant programs have strict rules that forbid “substance abusers” from qualifying for organ transplants. Seattle’s University of Washington Medical Center told Garon that if he ceased his marijuana use and tested clean for 60 days, he could have his liver transplant. Another medical center specified six months of marijuana abstinence before they’d save his life with surgery.

Doctors had told Garon he had about two weeks to live and he died on May 1, 2008. The cruelest irony is that cannabis is one of the few therapies Garon could have taken for pain and nausea that is not hepatoxic (liver-killing) and laden with a list of other nasty side effects.

In Hawaii, Kimberley Reyes suffered from cirrhosis and hepatitis and was given thirty days to live. She applied for and received approval for a life-saving liver transplant, only to have the rug pulled out from under her three days later when her insurance company, Hawaii Medical Service Association, discovered cannabis in her system, which she had used to relieve feelings of nausea, disorientation and pain. Ten days later she, too, was dead.

In Washington, Jonathan Simchen suffers from kidney failure. Doctors at Virginia Mason and University of Washington medical centers deny him a life-saving kidney transplant because of his participation in the Washington State medical marijuana program. According to Alisha Mark, a spokeswoman for Virginia Mason, “any patient who smokes any product — tobacco, cloves, medical marijuana — would be precluded from receiving a transplant here.”

In Georgia, a man named Walter emailed me after reading these transplant stories:

My name is Walter and my kidney transplant was denied by Blue Cross Blue Shield of Georgia due to the fact I smoke marijuana.

In January I went to the University of Minnesota/Fairview Transplant Center for an evaluation. In order to be completely honest with all the doctors I made them aware of the fact that I smoke marijuana and have for quite some time. I also made them aware that the use of marijuana has helped me with the decline of my appetite due to end stage of renal disease. With the exception of the hospital shrink, no one seemed to have a problem with it and even commented that my smoking had nothing to do with my kidney.

Blue Cross Blue Shield approved the evaluation but [after] having received the paperwork from Minnesota has declined my transplant, stating “Kidney transplantation has not been shown to be more beneficial than other alternative treatments for patients with ongoing substance abuse. Thus, I recommended denial of kidney transplantation” (Ronald Hunt MD – Medical Director).

Jim Klahr is a well-known medical marijuana activist here in Oregon who also suffers from cirrhosis and hepatitis C. In an ironic twist, he sits on the state’s advisory committee on medical marijuana, yet hasn’t used his most effective medicine for his pain and nausea since 2004 because he’s terrified of losing his chance for a liver transplant. “I’ve capitulated because basically I don’t have much of a choice,” says Klahr. Paul Stanford of The Hemp & Cannabis Foundation, the state’s largest medical marijuana clinic, estimates at least 30 Oregonians who use medical weed have died in the past 10 years after hospitals denied them new organs.

We understand why hospitals have strict qualifying criteria for transplant candidates. Transplant organs are in high demand and doctors want every recipient to have the best chance at survival possible. Hospitals screen their transplant lists for “substance abusers” because it really doesn’t make much sense to put a new liver into an alcoholic who will just go out and drink that organ into cirrhosis and failure as well. It’s foolhardy to give a new kidney to a heroin addict who would then possibly share needles and come down with another life-threatening disease.

But in the case of cannabis users, the concern for the chance of post-transplant survival is misplaced. According to new research at the University of Michigan, cannabis use has no impact on the long-term survival rates of liver transplant recipients. After studying 1,489 liver transplant patients, 155 of whom were cannabis users, over a span of eight years, researchers concluded, “Patients who did and did not use marijuana had similar survival rates. Current substance abuse policies do not seem to systematically expose marijuana users to additional risk of mortality.”

The cases of Cheryl Shuman and all these victims of a cruel and needless discrimination against desperately ill cannabis consumers illustrate why existing medical marijuana laws, while commendable, do not go far enough. Cheryl Shuman, Tim Garon, Jim Klahr and others are all legal medical marijuana patients in their state, yet powerless under the law to force hospitals to keep them on the transplant lists. This discrimination exists because cannabis is considered an “illicit drug of abuse” in the same category as heroin and LSD. This is why cannabis must be removed from Schedule I, legalized for prescription by any doctor in any state, so that it may truly be treated like other medicines, including the prohibition on discrimination against a transplant patient for the use of his or her doctor’s prescriptions.
(Article by Russ Belville, norml outreach coordinator)

Well, for anybody who hung in there and read the whole thing, what do you think? Ridiculous?
 
Very ridiculous. Nice to know that if the insurance company finds out I'm an MMJ patient that they can use it as an excuse to deny me a transplant. Wouldn't surprise me to find that they use it as an excuse to deny other types of surgery or procedures as well.
 
how can using a legaly obtained marijuana for medical use any different then lets say pain pills, ampetamines, and other mind altering yet legaly obtained drugs! I hope things change soon for you
 
Ridiculous, but it is reasonable to exclude patients who "smoke" regardless of the substance. Should patients be able to use the medicine their doctors advise? Absolutely, just consume it in alternate ways.
 
Knickers,

That might work if you didn't need such a large amount of plants to make edibles, and if you didn't have to eat a ton of them to get the same effect you get from smoking. I know some people swear by edibles, but I've tried them several times and they really didn't have much effect on me unless I ate a lot of them.
 
The people that use med mj that actually need it are probably vaping or eating it. It's ridiculous that they should get denied.
 
there has been very limited "official study" of the adverse effects of marijuana. until there is you can't expect anything other than what is happening. until it is FULLY researched and accepted by the medical community it will be seen as a "street drug". to expect anything else is just silly.
 
there has been very limited "official study" of the adverse effects of marijuana. until there is you can't expect anything other than what is happening. until it is FULLY researched and accepted by the medical community it will be seen as a "street drug". to expect anything else is just silly.



thats what i told my drug therapist hahahah he said it damages the middle portion and frontal lobe of the brain so in front of my parents i asked what study are u referring to the last legitimate study was shut down by the D.E.A for showing the potential to to help slow the growth of cancer cells isn't that a hoot the drug enforcement administration who happens to spend more annually than the executive legislative and judicial branch combined sticking their nose into life saving medical research go USA
 
fdd, you are right, but the studies dont take place because the government doesnt want to fund them because then the truth would be out. Even the AMA is trying to change the governments mind about pot, but they dont seem to be budging. Almost every study that has taken place (that didnt result in something ridiculous like pot killing brain cells) has been discredited. It is dumb to expect patients to not be treated like this, due to the unnecessary hatred towards pot, but organizations like norml always parade this shit around to help people realize how messed up this country is towards pot, and I do the same. :leaf:
 
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