MS and me .. PLZ read

jamaicanbubbler420 · #1 05-24-2009, 10:12 PM

so a little about my medical situation and what i am going threw.. plz post responces

i am 19 years old and am fighting with post trumatic stress disorder and what i belive is multiple sclorosis

it started when i was 18 and noticed that my finger would spasum some times but thought nothing of it at first.. then it started to get more frequient to abotu 30 times a day, with the same finger..i smoked pot ocasionally at this point

then as the months went by the spasuming started to go to my other fingers on both hands. my mom and i went to the doctor about it and we got sent to a nerologist in our town.

the appointment was set for 4 months because of wait times and such.. in the meen time i got blood work and other tests done ..

at this time i was working at a coffee shop and i was cleaning dishes when my whole hand was spasuming and i couldnt control it.. i droped the bowl and it broke in front of me and all i could do it stand there watching my hand spasum uncontrolably ...

soon after that eppisode i would spasum here and there but just tried not to let in interfeer with my life.

i started having eppisodes of blacking out for minutes at a time at work and at home ( i would be making snoke ones coffee and then come to and be in a dif past of the store with no recolection of what happend ) this lasted for 3 months and got to the point where i could not work any more for my own safty

the appointment came with the nerologist and we got order for a heart specialst and MRI and CT scans as well as a complete blood test of every thing

my mom went away to cuba fro vacation and was staying with my GF. i was with her and got a tingle up my spine and then lost all control of my body and started shaking uncontrollably.. this had happend 4 times sence

i was staring to for no reason loose control of my legs and arms while working and i would stand there with no signal going to my legs to move them.. i could stand but could not walk.. it would last for 30 min or so useually..

i had to take a leve of absince form work for a few weeks just to be safe...

it came time for me to move away and go to college for my first year.. durring the first month i had an eppisode where i could not walk again with extreme dizzyness i did not know what was going on.. i went to the clinic in the strange town and got no help

durring the first few weeks i would still spasum a bit here and there...

in my one class i had my legs sieze up again and went to the school nurse and got imitted to the hospital.. at the hospital i was having a sizure like episode while awake where my whole body was shaking wildly and could not stop

i called a nurse over and she saw it and did NOTHING .. i had been waiting for 5 hours to c a doctor and was allready in a room ... it took 2 h for the doctor to see me ... i told him bout everything else and he said go home to your home town and get help there.. and that there was nothing he could do for me

im in a strange town with no one but my self to care for me and am being denigned health care...

i phoned my mom and she was pissed but nothing we can do.. so eventually went home

with the weeks comming i would wake up and have no control of my legs and arms .. i could not stand so i could not go to class.. i was crying because of this .. this has never happend before..

it stared happening every few weeks or so

christmas comes and i get more tests doen at home and see my nerologist .. i told him about some reading i have done and think it might be MS.. with the tests back he sees no signs of it form the MRI... we get sent to another nerologist and get more tests and the same conclusion is drawn

they find nothing wrong at all

so with my reading bout my symptoms and no help being offferd to me i start smoking pot here and there and it does help calm down the spasums .

i was also geting sharp pain in my legs and head and arms when i was spasuming alot .. the pain would bring me to tears .. when i smoke it all gos away and i can regain controll just a bit over my body

with the last few months of school i was smoking more to help the spasums .. and i with out pot i would spasum 100 - 200 times a day all over my body every muscel .. when i smoked it stoped immidatly

when i came home for the summer i went to c a counceler and told him all about it .. and some past issues with my family.. from the issues with my family he said i have signs of post trumatic stress disorder and he treats MS paitiens and does belive i have it.

he wants me to start preparing for later in life when it does get worse... as i wrote this i have had about 60 spasums to day including all over my face , toes , arms and legs.. i do not have a job becasue of the way the econemie is but i am surching ..

i dont have any money for pot and every day is a struggle to cotntorl my spasums with out it ..

plz share thought and i will alaborate where i can ( there has been alot lot more symptoms then the ones i outnlined but there isnt enough space to say everything ... on the MS Canada web site it out lines symtoms and i have almost all of them but like 2 ) i do have relapsing like most MS patients and sever depression..

thanks for reading my story .. its been 2 years of this now

aba · #2 05-24-2009, 10:24 PM

thats crazy the doctors haven't been giving you some kind of prescription drug to take? If I were you I
would try to get help someway go see some specialist out of your town even out of the country if you have
too I mean you can't keep living like this...
you dont need a counceler you need some medication bro

Mysticlown150 · #3 05-24-2009, 10:41 PM

If I were you I'd find someone who sold clonazepam. Its a benzodiazepine (valium,xanax share this class of drug) and works for people who have severe seizures. Hell if the the doctors wont give it to you id get it myself but thats just my dumb opinion and no one should do it unless they agree. What your going through at the moment sounds very stressfull and that drug may help. I use to get some for one of my friends who had spasms and such untill his family got some insurance coverage that would pay for the medication (kind of expensive).

jamaicanbubbler420 · #4 05-24-2009, 10:49 PM

they tried me on lyrica but it made me suiicidal .. so i stoped taking it, i take vitamins everyday but i dont notice a change.. the most i can do is wait tell i get a diagnosis but right now i have no medicine or treatment.. the doctor at my college dienied me care becasue i dont have a diaggnosis even tho they can see the symptoms them selfs ... i was denied geting notes form the classes i missed its bull shit and they know it .. i live in canada. i want medical marijauana but no diagnosis yet

jamaicanbubbler420 · #5 05-24-2009, 10:51 PM

we went to the MPP and they said go to the hospital you will get the help you need . did that and they said well you have a nerologist and they arnt on call only by appointment so theres nothing we can do .. its so frustrating knowing that when i cant walk or when im spasuming 200 times a day i cant even go to the hospital

Babs34 · #6 05-24-2009, 10:52 PM

Quote:

Originally Posted by jamaicanbubbler420

so a little about my medical situation and what i am going threw.. plz post responces

i am 19 years old and am fighting with post trumatic stress disorder and what i belive is multiple sclorosis

it started when i was 18 and noticed that my finger would spasum some times but thought nothing of it at first.. then it started to get more frequient to abotu 30 times a day, with the same finger..i smoked pot ocasionally at this point

then as the months went by the spasuming started to go to my other fingers on both hands. my mom and i went to the doctor about it and we got sent to a nerologist in our town.

the appointment was set for 4 months because of wait times and such.. in the meen time i got blood work and other tests done ..

at this time i was working at a coffee shop and i was cleaning dishes when my whole hand was spasuming and i couldnt control it.. i droped the bowl and it broke in front of me and all i could do it stand there watching my hand spasum uncontrolably ...

soon after that eppisode i would spasum here and there but just tried not to let in interfeer with my life.

i started having eppisodes of blacking out for minutes at a time at work and at home ( i would be making snoke ones coffee and then come to and be in a dif past of the store with no recolection of what happend ) this lasted for 3 months and got to the point where i could not work any more for my own safty

the appointment came with the nerologist and we got order for a heart specialst and MRI and CT scans as well as a complete blood test of every thing

my mom went away to cuba fro vacation and was staying with my GF. i was with her and got a tingle up my spine and then lost all control of my body and started shaking uncontrollably.. this had happend 4 times sence

i was staring to for no reason loose control of my legs and arms while working and i would stand there with no signal going to my legs to move them.. i could stand but could not walk.. it would last for 30 min or so useually..

i had to take a leve of absince form work for a few weeks just to be safe...

it came time for me to move away and go to college for my first year.. durring the first month i had an eppisode where i could not walk again with extreme dizzyness i did not know what was going on.. i went to the clinic in the strange town and got no help

durring the first few weeks i would still spasum a bit here and there...

in my one class i had my legs sieze up again and went to the school nurse and got imitted to the hospital.. at the hospital i was having a sizure like episode while awake where my whole body was shaking wildly and could not stop

i called a nurse over and she saw it and did NOTHING .. i had been waiting for 5 hours to c a doctor and was allready in a room ... it took 2 h for the doctor to see me ... i told him bout everything else and he said go home to your home town and get help there.. and that there was nothing he could do for me

im in a strange town with no one but my self to care for me and am being denigned health care...

i phoned my mom and she was pissed but nothing we can do.. so eventually went home

with the weeks comming i would wake up and have no control of my legs and arms .. i could not stand so i could not go to class.. i was crying because of this .. this has never happend before..

it stared happening every few weeks or so

christmas comes and i get more tests doen at home and see my nerologist .. i told him about some reading i have done and think it might be MS.. with the tests back he sees no signs of it form the MRI... we get sent to another nerologist and get more tests and the same conclusion is drawn

they find nothing wrong at all

so with my reading bout my symptoms and no help being offferd to me i start smoking pot here and there and it does help calm down the spasums .

i was also geting sharp pain in my legs and head and arms when i was spasuming alot .. the pain would bring me to tears .. when i smoke it all gos away and i can regain controll just a bit over my body

with the last few months of school i was smoking more to help the spasums .. and i with out pot i would spasum 100 - 200 times a day all over my body every muscel .. when i smoked it stoped immidatly

when i came home for the summer i went to c a counceler and told him all about it .. and some past issues with my family.. from the issues with my family he said i have signs of post trumatic stress disorder and he treats MS paitiens and does belive i have it.

he wants me to start preparing for later in life when it does get worse... as i wrote this i have had about 60 spasums to day including all over my face , toes , arms and legs.. i do not have a job becasue of the way the econemie is but i am surching ..

i dont have any money for pot and every day is a struggle to cotntorl my spasums with out it ..

plz share thought and i will alaborate where i can ( there has been alot lot more symptoms then the ones i outnlined but there isnt enough space to say everything ... on the MS Canada web site it out lines symtoms and i have almost all of them but like 2 ) i do have relapsing like most MS patients and sever depression..

thanks for reading my story .. its been 2 years of this now

First and foremost, I am sorry to hear that at such a young age you are experiencing what you are.
Secondly, I must suggest that you NOT take a diagnosis of MS from a COUNSELOR......just doesn't work that way.
You had not only one, but two neurologists read an MRI........and BOTH concluded it was not MS. There are very specific readings that will show with an MRI. Lesions simply can not hide in an MRI. Had even a single lesion shown, you would have been further instructed to follow up with a spinal tap......which would possibly show ogliclonal bands. A neurologist would then diagnos as either probable or definite MS. But because no lesions obviously showed, that was not ordered.
There is obviously something that is causing this, but you absolutely can not take a diagnosis from a counselor....would be ridiuclous to entertain their theories. They are NOT in any place to give you such opinions...period.
That being said, you....as a patient, must seek answers. Doctors in general know "a little" about everything. A neurologist should be able to conclude something. Again, if TWO come up with not MS......it's just far from likely.
In the mean time, don't talk yourself into having this dreadful disease. Tt's a very shitty and CRUEL disease.

jamaicanbubbler420 · #7 05-24-2009, 10:54 PM

my moms close friend has MS. it took 8 MRIs to find the lessions on the brain. im thinking my case is somethign like this. she is beeter now but it took 4 years of the same tests over and over agian

jamaicanbubbler420 · #8 05-24-2009, 10:58 PM

im trying to read up on as much as i can.. i asked my nerologist to see me and he said he doesnt know what it is so its a waste of his time..
im cing the counceler to help with coping with the pain and spasums and everyday life.. not for absolute medical advice

jamaicanbubbler420 · #9 05-24-2009, 11:00 PM

im trying to read up on as much as i can.. i asked my nerologist to see me and he said he doesnt know what it is so its a waste of his time..
im cing the counceler to help with coping with the pain and spasums and everyday life.. not for absolute medical advice.

the only person i can really talk to that knows how i feel is the conceler so far. i dont want to be a burden to friends because im so young and family is having it hard enough as it is

Mysticlown150 · #10 05-24-2009, 11:07 PM

Quote:

Originally Posted by jamaicanbubbler420

im trying to read up on as much as i can.. i asked my nerologist to see me and he said he doesnt know what it is so its a waste of his time..
im cing the counceler to help with coping with the pain and spasums and everyday life.. not for absolute medical advice.

the only person i can really talk to that knows how i feel is the conceler so far. i dont want to be a burden to friends because im so young and family is having it hard enough as it is

I say talk to anyone who will listen. That's unbelievable though that a neurologist would say it was a waste of his time. If you've ever seen the show house, he does not give up at all until he finds what the patients problem is. Albeit he is a dick 90% of the time but he gets the job done.