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  #21    
Old 04-10-2009, 04:44 PM
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Originally Posted by OregonMeds View Post
Specifically what type of pain do you feel and precdisely where is it? There are often things having absolutely nothing to do with your spine that create back pain you can mistake as spinal. For example kidney infection can cause severe back pain and it's often non specific enough that you can't tell if it's in the spine, or in the muscle next to it, or lungs, or organs.

Does you pain level change day to day for no apparent reason?

Do you truly have other fibro symptoms? Random stabbing/burning pains for absolutely no reason like a charlie horse with no visible sign the muscle is cramping or doing anytying. Pains in completely random areas of your body that can't be explained otherwise. Toothaches, jaw pain, teeth grinding, jaw can feel locked up, name every single symptom you have felt pain wise or otherwise, even things like IBS, and if it coincides with physical activity that makes it worse afterwords or better afterwards or if easting a fat or heavy meal gives pain or not eating at all relieves pain...

Dude I have been there and done that all, I have what they think is fibro and every other back problem under the sun, and on top of that I also had kidney problems but couldn't tell cause I was so used to having back pain and so used to ramdom pain I didn't even know when my system was failing.
Here's my symptoms,
chronic reacurring back pain from t1 -t9 mri results show increased shmoral node space/ wedgeing of the vertabrate T1-9 my ortho and pain doc says derangment and non spacific back pain, but it think that itd be helpfull to him if he'd look at the mri films.
most of the time the pain is a dull/sick feeling that seems to increase with activity.everyday i have a new pain weather it be a nee or the lower back, sometimes a sholder most times right side. constant stomach irritation from meds and spikes of pain. ive had blood work done with no findings kidney, gul bladder functions ok. actully it was one of my first thoughts ( former paramedic) most days its a fight to get out of bed, disrupted sleep and trouble sleeping. ive been to physacal theropy 5 times for the same thig and no resaults just increased pain.
i mentioned fibro to my family doc , from reaserch ive done on my own i have all 18 trigger points plus and he was willing to put me on the meds for fibro with out much fight, but i declined and told him id rather find out the cause of the problem and treat that. if there is no other explanation then we would go threw that theropy. im willing to fight this but dam do i have to be in pain for the rest of my life i just need some releif two days a week would be nice and releif permanate grand. oh and also i have ibs and tmj unexpalined teeth problems and unexplained foot cramps.
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Old 04-11-2009, 09:18 AM
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Quote:
Originally Posted by candylime12 View Post
Here's my symptoms,
chronic reacurring back pain from t1 -t9 mri results show increased shmoral node space/ wedgeing of the vertabrate T1-9 my ortho and pain doc says derangment and non spacific back pain, but it think that itd be helpfull to him if he'd look at the mri films.
most of the time the pain is a dull/sick feeling that seems to increase with activity.everyday i have a new pain weather it be a nee or the lower back, sometimes a sholder most times right side. constant stomach irritation from meds and spikes of pain. ive had blood work done with no findings kidney, gul bladder functions ok. actully it was one of my first thoughts ( former paramedic) most days its a fight to get out of bed, disrupted sleep and trouble sleeping. ive been to physacal theropy 5 times for the same thig and no resaults just increased pain.
i mentioned fibro to my family doc , from reaserch ive done on my own i have all 18 trigger points plus and he was willing to put me on the meds for fibro with out much fight, but i declined and told him id rather find out the cause of the problem and treat that. if there is no other explanation then we would go threw that theropy. im willing to fight this but dam do i have to be in pain for the rest of my life i just need some releif two days a week would be nice and releif permanate grand. oh and also i have ibs and tmj unexpalined teeth problems and unexplained foot cramps.

Gotta tell ya, it sounds just like "Fibromyalgia". Sadly the only real way to start reducing that pain is with body work and a combination of Narcotic pain medicine and Cannabis; smoked through a vaporizer to help with the nausea from the pain meds and to increase their effectiveness.

If you value not having pain you MUST look into Myofascial Triggerpoints. The reason people with Fibromyalgia have "Tender points" is because of the state of their myofascial that surrounds every muscle bone and organ in the body!

Press around areas that have pain firmly looking for of the muscle areas that are taut and firm. When you find one of these areas (work slowly) look for a small point in that muscle that gives a "Good" pain.

That is a Myofascial Triggerpoint.

The next part is the treament.

Bodywork.

http://laurensfitness.com/2008/02/24...-knew-you-had/

I personally reccomend a hard rubberball instead of the soft tennis ball, as people with it bad like us need something harder. There are also a couple of tools you can order like the

http://www.backnobber-store.com/pres...FYVM5QodDCdYRw

The more you look into myofascial pain the more you realize its the cause of all your pain as a person with fibromyalgia.

The tricky part is getting your diet right to balance your GI tract which inturn balances your immune system, which in turn will make your muscles stop responding in the way they do to cause pain.


Try not eating any wheat for a month and see how drastically your digestion changes. Most people with Fibromyalgia have a wheat intollerance they do not know about that perpetuates other symptoms: Warning : If you have a wheat problem you will FIEND for it once you stop eating it for a few days.

Life with fibromyalgia can be
HELL, but if you dont start massaging your muscles and stop pushing yourself physically it WILL be hell.

Feel free to send me a PM if you ever wanna talk (I've been doing my own detailed research on Fibromyalgia for 7 years) or just vent about how shitty it is.
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Old 04-11-2009, 09:42 AM
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That all sounds like fibro to me too, TMJ, etc etc yep I got that too. If you also say you get horrible feelings like you're having a cramp that will tear your leg off but you look down at your leg and there is no cramp. If you have constant arms and legs falling asleep. If you have pain like you're being burned all the sudden ramdomly anywhere that can go away in an instant also...

Then we are all in the same boat. (Or rather WERE all in the same boat.)

I started trying to look for the cause myself a year or more ago and found several people who suggested fibro could be the symptoms of an infection or bacteria or actually a combination of more than one. It was suggested to try a round of heavy antibiotics. So, I hopped on ebay and grabbed myself some antibiotics. A little trick here medicine for exotic fish and medicine for people are the same from the same factories in the same capsules and you can buy all the antibiotics you like of many different kinds very cheap because the fish meds aren't controlled.) $20 for 500 Fishmox brand Amoxycillin 500mg capsules.

(Just saying what I did out of sheer desperation. Not suggesting anyone do anything like that themselves.)

I took every last one of the 500 pills and felt like a new man while I was on them. I am not shitting you those are some of the first pain free days I've had in a very very long time. But anyway, after the pills ran out then of course more problems came of a different type. My intestinal flora was hosed, got a c-diff infection and then my whole body itched like mad and then ended up with some other skin infection, fungal.... So now I'm fighting those new things off. My crushed vertibrae and all that stuff hurts less now. It still hurts like hell if I do much but not at all if I do nothing and that's new.

All the odd burning sensations like I was being jabbed with a red hot poker stopped. Cramping pains with no cramping there, stopped.
I have not had hardly any random unexplainable pains since then. (a few, not sure if that's normal maybe it's been so long.) I do still have TMJ, but that's about it off the top of my head.

DO NOT FOLLOW MY STUPID ASS SELF MEDICATING WITHOUT A CLUE METHOD HERE
I only did it because I'm fed fucking up and was willing to die trying to fix myself since my doctor won't and I have no insurance.

Something is working anyway... I'll let you know how it goes if I do get back to fully normal.
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Old 04-11-2009, 09:56 AM
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Oh forgot another part, not sure if it made a difference or not but they say your brain ends up rewired to some degree where any sensations can get switched like itching can feel like pain or a col breeze can feel like pain and that you can reset that by forcing on real pain and with excercise. (we've all heard that excercise thing but there was no way in hell I could do it.)

So anyway, I picked up a guitar and tried to get some dexterity back in the hand I crushed and maybe learn to play. I fucked with that guitar every single second I could stand the pain. Oh man was the pain bad on the fingers from those strings. But day after day after day of that was also going on at the same time as the antibiotics until finally I could play and it wasn't painful. That really did seem to work and it worked for more than just my hands. It's like my brain's pain receptors were reset. By which thing I'm not sure. I Just figured this might be worth mentioning.

I didn't learn shit about playing the guitar other than parts of songs I figured out by sound and haven't touched the guitars much since then, but am still way better.

If only my back could be fixed. Oh well, just being able to not have pain if I do nothing is a start. Oh and something brought me out of that fibro fog too, if you've experienced that symptom then you know you have fibro for sure, or what they are calling fibro.
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Last edited by OregonMeds; 04-11-2009 at 10:01 AM..
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Old 04-11-2009, 12:55 PM
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damn i really appreciate the response here just lets you know who gives a damn, the drs dont.
the pain i feel is more of a dull, throbbing pain sorta like a tooth ach. and it feels like my muscles are going to rip them self's apart from the muscle tension. I dont have much severe pain other than my back. and shoulders. and constant muscle spasms.
ill take my ibuprofen and my norflex smoke a joint and if i can get baked, it looks like im haveing a seizer. my wife taped it, its funny looking. my wife rubs soft ball sized knots out of my back just about everyday and adjust's my spine also she does better than my chrio I have major adjustment problems also. and its like ive lost my mind i have bad memiory loss. (short term). and it looks like theres inflated ballons on the right side of my spine. getting up outa bed feels like the biggest chore created by man.
im thinking that it maybe several pinched nerves, or impenged disk's from the incresed shmoral nodes and a touch of fibro. but the dr's arent wanting to tell me that im disabled due to this, and ive been out of work for now two years now. my wife got me on public aid for the medical part, and there starting to denie stuff cause the dr's are screwing around with the diagnoses.
what kind of strains are you guys recomending to help with this? right now im smoking shwag it helps but isnt the greatest. i know that b 52 helps and blue barry helps and widow. any suggestions and whare to buy them at so i dont get snaged.

I thank you guys it makes me feel better that im not just talking to empty air and gaining the knowlage to combat the dr's, just think its funny before my head injury they woulda never gotten away with this crap. after my head injury every year something declines health, cognative brain issues, memorie retenshion.
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Old 04-11-2009, 02:06 PM
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Fibro "Fog" is a horrible horrible symptom. The technical term for it is overlapping short-term amnesia, its caused by restricted blood flow to certain areas of the brain but the cause behind the restriction has many theories. Its crazy completely forgetting things constantly, only to remember when you see something half finished, or find your keys in the fridge.

I really wish I had more knowledge to share on the effects of individual strains on the crazy list of symptoms were all experiencing. I'm desperately trying to get my grow together so I can gather such information. (Not to mention cut back on these shitty pain killers that make me ill if i take enough to actually work)

Last edited by relativeood; 04-11-2009 at 02:10 PM..
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Old 04-11-2009, 02:48 PM
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Ive had to quit one of the most rewarding carear's that i loved ( firefighter/paramedic)
because short term memory is a big help when your trying to figure out why this person suddenly fainted etc. so i know what your talking about it sucks and can be very scary at times. i seem to come out of that when i smoke mother natures remody.
should i go threw with this phsyacal therapy ?????? opinions please.
Im goingto tell them ill do the physical torcher but i need some good meds. no meds no torture.
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Old 04-11-2009, 03:22 PM
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I'd go through with the Physical Therapy (I used to be a personal trainer, now I can't bend over without tremendous pain) but you want to work with people who have practice with "Myofascial Release". Basically your physical pain wont go away until you find and destroy (isometric pressure directly on the trigger points for extended periods of time: 30 seconds to 5 minutes, or Injections into the trigger points to release them)) those trigger points. It can be hard to explain to medical professionals that you need them to squash the knots in your muscles when they have never done it before. You really have to apply alot of pressure for a good long time to get them to release, and then after you get it to release stretch as often as you can (Every half hour or so, just for 30 secconds or so).
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Old 04-11-2009, 04:00 PM
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Short term memory loss due to fibro fog, that's only half of it. I couldn't even make the simplest of decisions when it was at it's worst. Go into the grocery store and just stand there, staring, confused about what I was going to get or trying to remember how to do simple division to figure out which item is cheaper or whatever. The stupidist things you can think of I couldn't do. And I'm not talking regular staring into the refridgerator confused, I mean two bags of chips, 30 minutes to decide which I should buy and then couldn't finish shopping because the pain got too bad from standing there so long.

At my worst I couldn't even explain to the doctor half the symptoms or trouble I had been having lately because I either couldn't come up with the words or flat out couldn't remember.

I never could get social security because when I had to see their doc I couldn't do anything but answer yes or no questions. He'd ask something like tell me what fibro is like and that was too complicated. I could only think of a few things, when I live with the damn shit every minute. I'm sure they though I was faking or nuts or just retarted.



Scary and very disturbing. I really thought for sure I had some brain tumor or something.
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Old 04-11-2009, 05:59 PM
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Originally Posted by OregonMeds View Post
Short term memory loss due to fibro fog, that's only half of it. I couldn't even make the simplest of decisions when it was at it's worst. Go into the grocery store and just stand there, staring, confused about what I was going to get or trying to remember how to do simple division to figure out which item is cheaper or whatever. The stupidist things you can think of I couldn't do. And I'm not talking regular staring into the refridgerator confused, I mean two bags of chips, 30 minutes to decide which I should buy and then couldn't finish shopping because the pain got too bad from standing there so long.

At my worst I couldn't even explain to the doctor half the symptoms or trouble I had been having lately because I either couldn't come up with the words or flat out couldn't remember.

I never could get social security because when I had to see their doc I couldn't do anything but answer yes or no questions. He'd ask something like tell me what fibro is like and that was too complicated. I could only think of a few things, when I live with the damn shit every minute. I'm sure they though I was faking or nuts or just retarted.



Scary and very disturbing. I really thought for sure I had some brain tumor or something.
I know what you mean about forgetting alot, I do the same thing at the doc's office. I told them sto slow down and talk like a human.
It didnt go very far but at least i spoke my mind right.
I think that the fog is just your brain's way of dealing with the pain, i tend to notice the more pain im in the worse the " fog " is. what sucks is when your traveling somewhere that youve been to several times and you get completly lost ~!!!!!! right !!!!!! how screwed is that.
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